Fall is here, and so is my desire to stay warm and cozy all the time in comfy layers. But a lot of times, adding layers is better for me in theory than it is in reality. Anything too tight or too bulky is really hard for me to move around in, and it often ends up getting really bunched up around my waist, because things fit differently when you're seated. But this Addison Bay Crewneck, with zippers on both sides, is an accidentally adaptive solution to my problems!
For my last post of the series this year, I thought I'd share some things that I wish people knew and understood about my life. I want to share some of the big and small things - the things that you might not realize, or things that I've maybe mentioned before but are worth repeating.
I know that the end of August is not necessarily the ideal time to be posting a pair of sandals, but I just bought these recently and was so excited that I wanted to share. I saw these Brooklyn Buckle Crocs sandals online and placed an order almost immediately. They're incredibly comfortable, surprisingly cute, and adjustable and adaptive, too.
A lot of times, my life with SMA feels pretty normal to me - I've got my routine down, and I don't feel like I'm living all that differently than everyone else. But there have been times, over the years, where I've tried a little hard to pretend to be normal... and regretted it afterwards. Times when I didn't really fully embrace and accept the impact SMA has on me. So I thought I'd explain a little bit about those times today.
I think it's pretty obvious that SMA affects a lot of my day-to-day life - it forces me to be creative, and come up with different ways of doing things. And sometimes it's taking things and using them in a way that has an extra benefit to me - like the things I talk about in my Accidentally Adaptive series. So I thought I'd share some of my current favorite "adaptive" products - things that I use to make my life a little bit easier.
I thought that for my first SMA Pride Month for the year, I'd start out general, with some assorted basics about SMA and what it means for me and my life.
This week, I wanted to share some recommendations for good disability representation on screen. When I say good representation, I mean that the stories told aren't cliche stories of disabled people as burdens, or as someone to be pitied, AND that the actors playing these characters are disabled themselves. This list isn't exhaustive, but the full version of that list wouldn't be that long, either. We still have a looong way to go until disabled people really feel represented on screen.
I am not necessarily the most skilled at doing my own makeup, but it is something I enjoy doing. It's fun to play around with new products and shades, and try out different looks. It's one of the few steps of the getting ready process that I can still do mostly independently, but I've had to come up with little hacks and workarounds to make it work for me and my mobility. One of the products I've found that makes it a little easier for me is my Artis foundation brush.
I posted on Instagram at the end of June asking people what disability-related topics they were interested in reading about, and one of them was transportation and getting around. So I thought I'd share a little bit about how accessible (or inaccessible!) different ways of getting around - public transportation, car, plane, ride sharing - are.
I talk a lot about accessibility out in the community, and it society - inaccessibility in the places I go the most, and the things I like to spend my time doing. But I've realized I've shared very little about accessibility in medical situations. I think that because people think of disability as a medical issue (rather than a societal one), they assume that healthcare must be accessible. I'm here to tell you that mostly... it's not.