I’m 34!
I'm 34 today! Last year I talked about being more comfortable in myself and my life the older I get, and that's still true. But I think that the word that comes to mind this year when I think about me and my life is content.
Gratitude List
Mondays are always rough, and today is a Monday after a time change, when we "lost" an hour of sleep. So it seems like a good day for me to make a gratitude list - just sharing the things that I'm feeling thankful for right now.
I’m Speaking at the Pittsburgh Humanities Festival
his post is a bit of a "pinch me" moment. I shared the good news on Instagram earlier this week, but I'm so, SO excited to share here that I'll be speaking at this year's Pittsburgh Humanities Festival at the end of the month!
Surrounding Yourself with Supporters
I know that there's so much going on in the world right now - lots of very heavy things. But that doesn't mean that my life has stopped, and I've had some good news lately. It feels strange in some ways, to be celebrating my own wins when there's so much bad all around. But I think it's important to celebrate the wins whenever they come, big or small, and in whatever form.
Celebrating Rare Disease Day
Today is Rare Disease Day - a day that acknowledges and celebrates the estimated 300 million (!!!) people with rare diseases. SMA is one of those diseases, so I'm one of those 300 million.
Feeding Tube Questions and Answers
On Friday, I shared two pictures on Instagram for Feeding Tube Awareness Week. I've posted about my feeding tube a few times, I think - I had it placed in 2013, so I've had it for quite a while now! I think it's super appropriate to post about on Valentine's Day, because deciding to have my feeding tube surgery was possibly my biggest act of self-love, ever.
Wisdom In Unexpected Places
Last week, I got a piece of wisdom from a place that I did not expect at all - the Babysitter's Club reboot on Netflix!
2022 Word of the Year
I have never chosen a "word of the year" before, but I've been seeing more and more people post about it, and it intrigued me. The intent is to think about what you want your year ahead to look like, and to pick a word that encapsulates that, as a kind of guide for the coming year. It's like goals but a little more broad and vague - nothing specific or actionable, but just big picture thinking.
Life Lately (Interrupted), January 2022
I've been writing Life Lately posts for a few months now - sharing the day-to-day of what I've been up to; the things that don't necessarily make it to a stand alone blog post. I started writing them about a year ago now, because it felt like life was slowly starting to pick up again. But now, almost exactly a full year since my first COVID vaccine, I'm back to feeling stuck again.
2022 Goals
I have never been one for resolutions for the new year. Part of this is that I hate failure, and making resolutions on January 1 for the rest of the year just feels like setting myself up to fail. But also, after the last almost two years, we know that so much of life is unpredictable - resolutions may shift and change as the world, and my life, changes.