SMA Awareness Month, Volume 2 – People’s Perceptions
Welcome to my second post in my series for SMA Awareness Month! In my last post, I tried to give a general overview of my life with SMA. This time,…
Currently Watching And Reading, 8/4/2017
Each Friday, I like to share something interesting that I'm watching, reading, or listening to this week, in case you're looking for something over the weekend! This week, I'm talking…
SMA Awareness Month
August is SMA Awareness Month, so I thought that each Wednesday in August, I'd share something different with you about my life with SMA. I want to give you a…
Why Healthcare Is So Important To Me
Today's post is taking a slightly different path, to talk about something that I think is incredibly important and very timely. Yesterday, the Senate voted to advance a bill that…
DC Trip Recap
In April, I had the chance to take a trip to DC to participate in a Patient-Focused Drug Development (PFDD) meeting between the FDA and Cure SMA. This was only…
What Is SMA?
So, I've mentioned a few times now that I have SMA - Spinal Muscular Atrophy. I thought it would be a good idea to tell you a little more about…