SMA ::
Celebrating Rare Disease Day
Today is Rare Disease Day – a day that acknowledges and celebrates the estimated 300 million (!!!) people with rare diseases. SMA is one of those diseases, so I’m one of those 300 million.
Feeding Tube Questions and Answers
On Friday, I shared two pictures on Instagram for Feeding Tube Awareness Week. I’ve posted about my feeding tube a few times, I think – I had it placed in 2013, so I’ve had it for quite a while now! I think it’s super appropriate to post about on Valentine’s Day, because deciding to have my feeding tube surgery was possibly my biggest act of self-love, ever.
Accidentally Adaptive: Drybar
I’m so excited to be back with another “accidentally adaptive” post – I’m planning to turn this into a series! If you didn’t see my first post about this puffer cape, the concept is that I’m sharing things that aren’t technically meant to be “adaptive,” but end up being accessible to me. The first one was a jacket, but this time it’s a place, and one of my favorite places at that – Drybar.
Wisdom In Unexpected Places
Last week, I got a piece of wisdom from a place that I did not expect at all – the Babysitter’s Club reboot on Netflix!
Hi, I’m Heather!
Welcome to my corner of the internet! This is where I share reports on style, beauty, and my life living with spinal muscular atrophy.
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