Disabled While Going to a Baseball Game

Every year, I like to go to at least one baseball game here at PNC Park. Admittedly, I'm not the biggest baseball fan, but I love to go for the experience - the views of the city, the food, and just being there, relaxing at having a fun time. A few weeks ago, we had an unseasonably warm week for early May, realized it was also fireworks night at the park, and decided a few days in advance on somewhat of a whim to just buy tickets! And so I thought it would be fun to share a little bit about going to a game as a wheelchair user.

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Accidentally Adaptive: Ultra Thin Cotton Pads

I love learning about skincare and creating a routine that works for me and my skin, but sometimes it gets physically tricky for me to work with different products. The type of dispenser and the texture of the product itself can have a huge impact on how easy (or how challenging) it is for me to apply on my face. But I've started using these ultra thin cotton pads to apply more of my products, and they've made the process so much easier - the latest "Accidentally Adaptive" addition to my routine!

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Disabled While Going to the Theater

For a few years now, I've had a subscription to the Broadway tour series here in Pittsburgh, which means that I've seen quite a few shows by now! I saw Company over the weekend (and loved it!), and when I posted a story to Instagram, someone replied asking about accessibility at shows. Inspiration hit, and I thought I'd share what it's like for me to be disabled while going to the theater in Pittsburgh.

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What to Bring to the Hospital

After my recent hospital stay, I realized how much more comfortable I was there (as comfortable as you can be in a hospital) because of what I brought with me from home. I've had quite a few experiences, over the years, of hospital stays, so I've curated a good packing list of the essentials to bring during a hospital stay! There's a fine line between not bringing enough (and wishing you had brought more) and bringing too much (and feeling cramped in a small hospital room, plus risking losing something when you go home). In my opinion, these are the things the bring!

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Accidentally Adaptive: Streaming Movies

This year, I decided - somewhat on a whim - that I wanted to watch all of the best picture nominees for this year's Oscars. I had seen a few of them already, but spent this past weekend having a cozy movie marathon where I streamed more of them, one after the other. And it hit me that this was only possible because all of the movies were available to watch on streaming, which is so much more accessible for me than going to the movie theater. So I thought I'd talk about how movies being available on streaming is actually Accidentally Adaptive!

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Rare Disease Day and SMA

Every year on the last day of February, we celebrate Rare Disease Day - a day dedicated to raising awareness, engagement, and support for those living with or caring for someone with a rare disease. My disease, Spinal Muscular Atrophy (SMA), is one of those rare diseases! I put up an Instagram question box yesterday, and am answering a few of the questions that came up. I'll also be answering more on Instagram, so make sure you're following along there too!

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Disabled While in the Hospital

This might surprise you, but I typically try to avoid the hospital - both the ER and being admitted - as much as humanly possible. If it's something that can be handled at home, or as an outpatient, even if it's a little bit more work, I'll take that option. That's because while hospitals might seem like they're something that should be accessible by default, that's actually far from the case. Hospitals are extremely hard to navigate as a disabled person! Since my recent hospital stay is still fresh on my mind, I thought I'd explain a little bit more.

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Disabled While Having Plans

I mentioned earlier this week that my October has been pretty busy - at least, for me! I've had both weeknight and weekend plans - book signings, shows - in addition to work, plus the work I do for the blog. I love having plans and things to do - I don't regret going to any of the things I did over the last month. But for me, saying yes to a fun event is more than just making sure my schedule is clear. There are so many other considerations that I have to keep in mind, and I thought I'd try to explain a little bit.

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On Growth

I had the chance this week to do something really cool - I was part of a panel for an Intro to Disability Studies class at a local college, where I, along with the other panelists, got to talk about accessibility, disability, ableism, intersectionality, and my personal experiences with all of the above. It was a really great class, and the students were so open and interested and receptive. It also made me a little bit introspective, too, and made me think back on my own college experience, and what's changed for me since then.

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Adaptive Options at Target

Target has really been impressing me lately with their adaptive clothing options. I love that it's something they've been consistently doing for a few years now, and are adding to it each season, just like they would with any clothes offer. Honestly, it's something I never thought I'd see a big name store like Target doing, so it's been fun to be able to easily buy adaptive products that work for me.

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