One of the questions that came up during my Elizabeth Holmes Instagram takeover was what a typical day in the life looks like for me. Keeping SMA Pride Month in mind, I thought it might be fun to share an old-school blogging "Day in the Life" post, with a little extra information about the ways that SMA affects my normal, everyday life.
On Friday I had the incredible honor of doing a takeover of Elizabeth Holmes' Instagram! I put up a Q&A box during part of it and got SO many good questions, and then put up another Q&A box on my own Instagram on Sunday because there just wasn't enough time to answer them all. I'm going to answer a few of them here in more detail - some that I already partially answered, and some that I didn't get it.
Happy Friday! I have a pretty low-key weekend planned - going out to dinner to celebrate my dad's birthday at our of our favorite restaurants, Senti, but other than that I don't have any real plans. I have some work to do this weekend so I'm trying to keep my schedule pretty clear. And hoping that I can do my work outside and enjoy this stretch of beautiful weather, too.
Throughout Disability Pride Month, I've been trying to share different parts of my experience as a disabled woman. I think this will probably be the last post about it (where did July go?!). Since I share a lot about style and what I'm wearing, I thought that I'd talk a little bit about what it's like to care about fashion when you're disabled - why I love it, and when it can be a struggle.
July is Disability Pride Month, so I can’t think of a more perfect time for this post. Growing up with a disability when I was younger was a whole different world than it is today. I basically grew up right along with the Americans with Disabilities Act, so things were starting to change, but it was still early.
The weather has been absolutely gorgeous here this week! I've been spending so much time outside, and I've also been "recovering" from having my friend visit last week - I forgot how tiring socializing can be, ha! It's been a pretty low-key week around here, but in a good way, so I'll take it.
I shared a little bit about this on Instagram over the weekend, but I wanted to expand on it a little bit more beyond the space allowed in an Instagram caption! I got a haircut over the weekend (my first one since February 2020!) and felt like a whole new woman, basically. It just felt like I was shedding not only a lot of physical weight, but emotional weight, too - it felt like a leap towards normalcy.
We got so much snow this week! It looks really pretty from inside, but honestly, I'm pretty over it. It makes it difficult/borderline impossible for me to get outside, and just knowing that makes me feel so much more holed up.