SMA Pride Month: A Day in the Life

One of the questions that came up during my Elizabeth Holmes Instagram takeover was what a typical day in the life looks like for me. Keeping SMA Pride Month in mind, I thought it might be fun to share an old-school blogging "Day in the Life" post, with a little extra information about the ways that SMA affects my normal, everyday life.

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Disability Pride Month Q&A

On Friday I had the incredible honor of doing a takeover of Elizabeth Holmes' Instagram! I put up a Q&A box during part of it and got SO many good questions, and then put up another Q&A box on my own Instagram on Sunday because there just wasn't enough time to answer them all. I'm going to answer a few of them here in more detail - some that I already partially answered, and some that I didn't get it.

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Friday Favorites

Happy Friday! I have a pretty low-key weekend planned - going out to dinner to celebrate my dad's birthday at our of our favorite restaurants, Senti, but other than that I don't have any real plans. I have some work to do this weekend so I'm trying to keep my schedule pretty clear. And hoping that I can do my work outside and enjoy this stretch of beautiful weather, too.

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Disability Pride and Style

Throughout Disability Pride Month, I've been trying to share different parts of my experience as a disabled woman. I think this will probably be the last post about it (where did July go?!). Since I share a lot about style and what I'm wearing, I thought that I'd talk a little bit about what it's like to care about fashion when you're disabled - why I love it, and when it can be a struggle.

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Defined By My Disability

July is Disability Pride Month, so I can’t think of a more perfect time for this post. Growing up with a disability when I was younger was a whole different world than it is today. I basically grew up right along with the Americans with Disabilities Act, so things were starting to change, but it was still early.

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I shared a little bit about this on Instagram over the weekend, but I wanted to expand on it a little bit more beyond the space allowed in an Instagram caption! I got a haircut over the weekend (my first one since February 2020!) and felt like a whole new woman, basically. It just felt like I was shedding not only a lot of physical weight, but emotional weight, too - it felt like a leap towards normalcy.

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