Advocacy ::
SMA Awareness Month: Daily Life
is over, but that doesn’t mean that my disability content stops! I do always have disability posts, regardless of the month – disability is a huge part of my life, obviously, and not something that stops at the end of July. But August is also SMA Awareness Month! So this month, I’ll be sharing about disability again, but from a more specific SMA perspective.
Since it’s the first post of the month, I thought that I’d do something a little more introductory. It’s hard to explain all the ways that SMA affects my day-to-day life, so I thought I’d take you through parts of a day in my life to give you a bit of a glimpse.
Disabled Lives Have Value
This wasn’t the way that I planned to end my Disability Pride Month posts – I had another post, and another topic, planned. But last week, an article in Time magazine came out, with an excerpt of a forthcoming book written by one of Donald Trump’s nephews. And after reading the article, it was all I could think about for days – it really burrowed deep into my mind and got stuck there. So I want to end Disability Pride Month by taking today to remind you all that no matter what people may say, disabled lives have value.
Books with Disability Representation
Today’s post is an updated version of a post I wrote back in 2022 for Disability Pride Month. I’m sharing books with disabled or chronically ill characters, or written by disabled or chronically ill authors (or both!). It’s hard to put into words how important it is for disabled people to be represented in books – to feel seen in the things you’re reading. And for non-disabled people, reading about disabled characters, or reading about disability, can help broaden your understanding. It’s so important and honestly, something that’s still really lacking.
Disabled While Going to an Amusement Park
I spent the end of last week in Cedar Point, an amusement park in Sandusky, Ohio. My dad spent a summer when he was in college working there are really loved it, so in my childhood we used to go back every summer. We took a break for about 10 years, but have started going back every year again since 2021. I always enjoy my time there, but I think a really valid question is “what do you do there?” Because for the most part, I don’t ride the rides anymore! But here is what I can do at an amusement park.
Hi, I’m Heather!
Welcome to my corner of the internet! This is where I share reports on style, beauty, and my life living with spinal muscular atrophy.
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