SMA Awareness Month: Other SMA Advocates You Should Follow
For the third post in my SMA Awareness Month series (see the first here, and the second here), I wanted to share some other SMA advocates for you to follow!…
SMA Awareness Month: A New Treatment
Last week was a very exciting one within the SMA community. The FDA approved Evrysdi (or risdiplam, the name used during development), the third ever treatment for SMA.Before this past…
SMA Awareness Month: SMA FAQ
August is Spinal Muscular Atrophy (SMA) Awareness month, so each year in August I like to do posts throughout the month talking about SMA. This year, I'll be posting each…
SMA Awareness Month: Other Perspectives, Part 3
For the third guest post in my series for SMA Awareness Month, meet Alyssa. She and I met through Instagram also, and I'm so happy you get to read her…
SMA Awareness Month: Other Perspectives, Part 1
I thought that this year for SMA Awareness Month, I'd share a few posts by other people I know who have SMA, so that you get to hear different perspectives…
SMA Awareness Month
For those of you who read my posts in August last year, I did a whole series on having Spinal Muscular Atrophy (SMA), and the different ways it's affected my…