On Friday I had the incredible honor of doing a takeover of Elizabeth Holmes' Instagram! I put up a Q&A box during part of it and got SO many good questions, and then put up another Q&A box on my own Instagram on Sunday because there just wasn't enough time to answer them all. I'm going to answer a few of them here in more detail - some that I already partially answered, and some that I didn't get it.
Almost a year ago (wow - I can't believe how time flies!) I shared a post about Lifting the Limit. You can read that post here. As a quick refresher/recap of…
For the third post in my SMA Awareness Month series (see the first here, and the second here), I wanted to share some other SMA advocates for you to follow!…
I mentioned in this post that July is Disability Pride Month - it's a fitting month to celebrate, because it's the anniversary of the signing of the Americans with Disabilities…
Every year at the end of February, I like to do a refresher post on SMA in honor of Rare Disease Day, which is February 29th this year.Spinal Muscular Atrophy,…
Last week, I had the honor of being given the ACHIEVA Award of Excellence in Community Awareness. ACHIEVA has a long history in Pittsburgh - they've been around for over…
Dealing with accessibility issues, and trying to improve them, always feels like such a mixed bag. It's never a straight path forward - for every big step forward I feel…
I've written before about having caregivers/aides who help me, and I've written about what it's like when they don't show up (in this post). But what I haven't talked about…
One of my favorite things about working in Oakland is how close it is to some of Pittsburgh's best cultural attractions, especially the Carnegie Museums of Art and Natural History.…
Tomorrow I head back to Stow, Ohio for the crowning of the next Ms. Wheelchair USA. I can't believe how quickly the past year has gone by! It's still surreal…
