Advocacy ::

Accidentally Adaptive: Luna Daily Everywhere Spray-to-Wipe

I’m always kind of hesitant to talk about anything showering-related on here, because there’s so much judgement around cleanliness! But the reality is that for me, and for many other disabled people, showering is exhausting! I don’t shower every single day. But it’s still important to me to look and feel fresh. And this Luna Daily Everywhere Spray-to-Wipe is the perfect thing to help me.

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Surviving and Thriving with SMA

This is my last post of the year for SMA Awareness Month, so I wanted it to be something impactful. And I got to thinking about the parents of kids who have recently been diagnosed, or the teens with SMA who are trying to figure out what their future might look like. And I just want them to know that they will be okay – that it’s possible to not only survive, but to thrive, with SMA.

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SMA and My Social Life

I had friends over on Friday night, and it made me think about all the different ways that having SMA affects my social life. Even just a simple night out (or in) with friends comes with a lot of different considerations and logistics! I’ve talked about some of these things over the years in different posts, so I thought I would put it all together for this week’s SMA Awareness Month post.

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SMA and Style

Since I share so much about style and clothing on here, I thought it might be interesting to talk about what I like to wear through the lens of disability and SMA. For me, SMA has a huge impact on the things I can comfortably wear, and sometimes makes it a bit challenging for me to translate a look in my head into reality. Sometimes, it makes me be creative and have more fun with the way I put together an outfit… and sometimes, it means that I buy multiple versions of the same item, because I’ve finally found something that works for me (see my Nap Dress collection).

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Hi, I’m Heather!

Welcome to my corner of the internet! This is where I share reports on style, beauty, and my life living with spinal muscular atrophy.

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