I've mentioned before that July is Disability Pride Month - in fact, I have another whole post about it. But I want to be upfront about the less positive side of being disabled, too. There are days that I don't really feel like cheering about my disability pride, because I'm just too beat down and frustrated. Last Friday was one of those days.
I have been waiting to write this post for SO long that it almost feels overwhelming to actually sit down and do it. A little over a week ago now, I officially started taking Evrysdi, one of only three FDA-approved treatments for the disease that I have, Spinal Muscular Atrophy (SMA).
Happy Friday! My big, exciting news from the past week is that I started Evrysdi, the treatment for Spinal Muscular Atrophy (SMA), the disease that I have. I'll have an entire post about it next week where I'll share more, but it's so huge that I didn't want to wait any longer to share the news!